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| sonnet.co.uk/muscular-dystrophy/ Includes key facts, advice, medical research, management and care. The aim of the Muscular Dystrophy Group is to identify the causes of muscular dystrophy and allied conditions, develop treatments and discover cures. | |
| disabilitynet.co.uk/groups/musclepower/ Individuals can meet as a group via telephone conferences, email and policy meetings, and extracts from Muscle Power - The Magazine are available with details on how to subscribe. A voluntary organisation for those with a Neuromuscular Impairment (NMI). | ||
| mda.org.au/ Contains extensive information on all muscular dystrophies and related neuromuscular disorders including a glossary of terms and information about the genetics of muscular dystrophy. | ||
| mdac.ca/ Conducts research and creates awareness through education. Also provides services such as personal support programs. A national voluntary agency concerned with neuromuscular disorders and associated distress. | ||
| mdi.ie/ Voluntary organisation providing support for people with muscular dystrophy and their families by offering counselling, respite services, holidays, youth activities, independent living and training opportunities. Also features the Muscular Dystrophy Irela | ||
| noah.cuny.edu/neuro/musdys.html Collection of resources about muscular dystrophy including information about genetics, carriers, prenatal diagnosis, specific types of the disorder, and care and treatment. Provides a newsletter and magazine which contain the latest news and research fin | ||
| dmd.nl/ Includes Duchenne and Becker muscular dystrophy, muscular dystrophy point mutation databases, diagnostic techniques, and research news. Information for scientists performing research into and/or diagnosis of muscular dystrophy. | ||
| genetics.gla.ac.uk/neil/neurodis.html Extensive searchable and browsable index of neurological diseases. | ||
| myotonicdystrophy.com/ US based group offering information about Myotonic and Congenital Myotonic Dystrophies, two variants of muscular dystrophy. Articles are presented within sections, and deal with sleeping problems and energy levels, heart problems, genetic information, per | ||
| ninds.nih.gov/ The NINDS offers news, coordinates events, and conducts research into disorders of the brain and nervous system. Also provides information about specific conditions such as Alzheimer's disease, autism, cerebral palsy, epilepsy, and Parkinson's, together w | ||
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